Document Type
Article
Publication Date
2019
Abstract
There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD are significantly underrepresented in health research. Even when researchers purposively seek to include PWD in studies, challenges emerge related to recruitment and retention, leading to inadequate representation and surface understandings of this population. This in turn contributes to the perpetuation of implicit and explicit health disparities that are already experienced by this population. Grounded within a qualitative, community-based participatory health research framework, we highlight challenges associated with recruiting and retaining PWD in health research, including a critical analysis of the research enterprise structure, how this disables accessible research practices for PWD, and leads to continued skepticism among PWD regarding the value of participating in research. Finally, we propose solutions to create and maintain a culture of access and inclusion as well as long-term collaborative and equity-focused partnerships.
Version
The article available for download here is the post-print version. Locate the version of record using the DOI below.
DOI
http://dx.doi.org/10.1177/1049732319833361
Publication Title
Qualitative Health Research
Recommended Citation
Banas, Jennifer R.; Magasi, Susan; The, Kim; and Victorson, David E., "Recruiting and Retaining People with Disabilities for Qualitative Health Research: Challenges and Solutions" (2019). Health Sciences and Physical Education Faculty Publications. 8.
https://neiudc.neiu.edu/hpera-pub/8
Supplemental Table 2: Accommodations and modifications checklist
Banas Magasi The Victorson 2019 Table 1.pdf (262 kB)
Table 1: Solutions in Action